Video Portrait Ernie

April 3rd, 2013 by Kris

Ernie continues to practice carpentry at home, despite his chronic pain.

This video is a product of a collaboration between Lindsay St. Louis, Senior Undergraduate Neuroscience Major, Old Town, ME and Mike D’Apice, Communications Major/Art Minor graduate both of the University of New England. Lindsay started volunteering for the Chronic Pain Support Group of Southern Maine last fall, and her connections with the members of the group have enabled her to lead this video narrative project.  Mike is a freelance videographer, proficient in the video production process from shooting to video editing, and the art of visual storytelling. See more of his work HERE. Lindsay and Mike will join several other UNE students in presenting their narratives at the 11th Annual UNE Interprofessional Spring Symposium: The Science of Pain and the Art of Healing.

Learn more about the 11th Annual UNE Interprofessional Spring Symposium: the Science of Pain and the Art of Healing, April 4, 2013, Biddeford Maine.

Heal / Tell Liam

April 3rd, 2013 by Kris

Liam, age 10, lives with Rheumatoid Arthritis.

I remember going to one doctor and they told me people don’t usually get it until they’re older. I got it in my knees first, now ankles, fingers, and I think I might have it in my back. When I wake up my knees and ankles hurt and my back really hurts.

MOM: He’s easy going, except in the morning. He’s a whole different kid in the morning because of the pain.

I go to lunch every Wednesday—it’s for different kids, 5th and 4th graders who have any disorders, and we talk about it. About half the kids have RA but we all have to go to the hospital a lot and we don’t like it.


They kept asking me if I did anything to break my leg and they kept asking. They asked a lot.

Mom: It was almost a month that he was in a cast, permanently damaging his knee. No one thought of it. “No, you must have broken your leg.”

When I got to the doctor for my Arthritis I don’t get how my arthritis is happening and I don’t know what happens to the joints. I didn’t get a lot of the words they told me—it gets complicated…

MOM: What’s the term you use for when you can’t move your hands?
LIAM: If my hands are in one position for a long time they get ‘frozen’.
MOM: He tends to say he’s fine when he’s not fine.
LIAM: When? (laughs)
MOM: He’s accustomed to being uncomfortable. But he’s patient with people.

Usually I can’t wait until it gets bad; my medicine takes a long time to work.

At nighttime I give them food and my sisters get the eggs.

I give the sheep hay. It’s hard—the hay is heavy. When we have lambs we have to split them up.

I want to work for the Animal Welfare Society and be a ski coach, which I can do when I’m 16.

Heal/Tell is a series of narrative and portraits by Cathy Plourde, Director of Add Verb Productions and Holly Haywood of the University of New England.

Please leave a comment – do you live with chronic pain?  What helps you?

Learn more about the 11th Annual UNE Interprofessional Spring Symposium: the Science of Pain and the Art of Healing, April 4, 2013, Biddeford Maine.

Video Portrait of Nanette

April 2nd, 2013 by Kris

Nanette lives in Maine with Fibromyalgia / Mytosis.

This video is a product of a collaboration between Lindsay St. Louis, Senior Undergraduate Neuroscience Major, Old Town, ME and Mike D’Apice, Communications Major/Art Minor graduate both of the University of New England. Lindsay started volunteering for the Chronic Pain Support Group of Southern Maine last fall, and her connections with the members of the group have enabled her to lead this video narrative project.  Mike is a freelance videographer, proficient in the video production process from shooting to video editing, and the art of visual storytelling. See more of his work HERE. Lindsay and Mike will join several other UNE students in presenting their narratives at the 11th Annual UNE Interprofessional Spring Symposium: The Science of Pain and the Art of Healing.

Learn more about the 11th Annual UNE Interprofessional Spring Symposium: the Science of Pain and the Art of Healing, April 4, 2013, Biddeford Maine.

Video Portrait of Robert: Part 3 of 3

March 31st, 2013 by Kris

Hear from Robert, a former Navy SEAL living with chronic pain.

This video is a product of a collaboration between Lindsay St. Louis, Senior Undergraduate Neuroscience Major, Old Town, ME and Mike D’Apice, Communications Major/Art Minor graduate both of the University of New England. Lindsay started volunteering for the Chronic Pain Support Group of Southern Maine last fall, and her connections with the members of the group have enabled her to lead this video narrative project.  Mike is a freelance videographer, proficient in the video production process from shooting to video editing, and the art of visual storytelling. See more of his work HERE. Lindsay and Mike will join several other UNE students in presenting their narratives at the 11th Annual UNE Interprofessional Spring Symposium: The Science of Pain and the Art of Healing.

Prose Portrait of Robert: Part 1 of 3
Heal/Tell Robert: Part 2 of 3

Learn more about the 11th Annual UNE Interprofessional Spring Symposium: the Science of Pain and the Art of Healing, April 4, 2013, Biddeford Maine.

Heal/Tell Robert: Part 2 of 3

March 31st, 2013 by Kris

Meet Robert, former Navy SEAL living with chronic pain.

A year ago I had some really bad thoughts and the horse heard my voice, heard what I’m thinking. “This person’s broken. I’ll get close and let him know I feel what he’s feeling.

I tell my wife I’m leaving, I’ve got to see the horses. They so set me right. I’m clear the rest of the day until the night when inflammation starts to set in my joints.

The entire left half of my brain is completely covered in scar tissue. This horse can erase all that for a moment—everything—the pain, the thoughts in my head—my mind is completely free and clear.

Vets are crying quietly in a room, thinking they’re better off dead than alive, just taking up space with all the memories.

Chronic pain and PTSD are sister and brother, you won’t have one without the other. I know nothing will erase my mind from the horrors but I can forget about them for two minutes—magic I can’t get in a pill.

I have a first name. Use it. I’m a case number, but it’s got to be beyond that.

Heal/Tell is a series of narrative and portraits by Cathy Plourde, Director of Add Verb Productions and Holly Haywood of the University of New England.

Please leave a comment – do you live with chronic pain?  What helps you?

Prose Portrait of Robert: Part 1 of 3
Video Portrait of Robert: Part 3 of 3

Learn more about the 11th Annual UNE Interprofessional Spring Symposium: the Science of Pain and the Art of Healing, April 4, 2013, Biddeford Maine.